02.09.10
Posted in my life tagged health, time management, time, perfectionist, demands, satisfaction at 5:40 pm by vintagekat
Not that I’ve exactly been having fun lately.
But still, time seems to have become a bit of a blur lately. Counting the Christmas break, in two days time it will be seven weeks since I was last at work. It’s strange, because it both does and doesn’t feel like that long.
It does feel a long time ago that I had to really get my ‘work thinking cap’ on. This part of my brain however, has been put back into action a lot more this last week or so by having nearly daily contact with the person covering my job at the moment. It was a real struggle at first to even think about work stuff, but is now coming a bit more easily to me.
Then on the other hand, the week in hospital and the first few weeks home after that, seemed to have gone in a bit of a tired, frustrated, worried and at times painful haze. I thought the days would really drag, but given so much of the time was spent resting or on the phone a lot, the days and weeks seem to have passed by quite quickly.
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02.06.10
Posted in gratitude, guillain-barre syndrome, headspace tagged friends, family, health, auto-immune diseases, emotion, house, gratitude, mobility, gratitide, gratitude journal, thankful, home environment, support, illness at 3:21 pm by vintagekat
It seems that most article written these days about the secret to happiness, seem to always fall back on two important themes. Showing gratitude; and feeling good, from doing things for others.
For ages now I’ve meant to keep a journal, or perhaps create a category for daily posts about daily things that I’m grateful for. But the ‘nice idea’ always seems to fall off the bandwagon a bit due to time constraints, the effort involved – and more often than not as this blog will attest – the ongoing struggle of my life and the lack of things to actually be feeling grateful about. Although I know that the last comment is rather a cop-out, as I’m sure if I really reflected closely each day I’m sure I would find things that I would be grateful about, no matter how small they may seem in comparison to the general ‘big picture’ of my life.
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02.04.10
Posted in guillain-barre syndrome tagged auto-immune diseases, crying, dr, electric shock, electromyography, emotions, GBS, guillain-barre syndrome, health, hospitals, muscle test, needles, nerve conduction velocity test, nerve test, stress at 5:53 pm by vintagekat
Electrocuting and stabbing needles into people that is. Both doctors performing the tests expressed their dislike of this part. I would hope they don’t like that part of their job. Pity those patients who should come across a Dr who actually did enjoy it!
So we went for a six hour round trip to Palmerston North Hospital Neurology Department yesterday for my nerve conduction study (NCS).
The actual car trip wasn’t as bad as I had anticipated. The weather report had said NP would be 26 degrees, and PN would be 28 degrees yesterday. Great for being in a car for six hours! Fortunately for us though it was cloudy for most of the trip, making it a little less hot and sticky. Toileting wasn’t too much trouble after all (unless you count the fact that my crutches both fell over onto the floor at the McDonald’s toilet – ick!). We excitedly gave the disabled sticker it’s first outing at the Wanganui McDonald’s. Although it was kind of a non-event in the end because there were actually other car parks available! But never-the-less, we might as well make the best use of it while we can! It was also refreshing to be out of the house for an extended time. I’m sure the fresh air blowing into the car did me good (apart from all the dust inhaled from the seemingly never-ending amounts of road works that is…).
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02.02.10
Posted in guillain-barre syndrome tagged work, hospital, frustration, auto-immune diseases, emotions, guillain-barre syndrome, GBS, physio, nerve conduction velocity test, bureaucracy, ACC, doctors, rehabilitation, recovery, wages at 5:47 pm by vintagekat
There were tears before 9.00am today. Even that’s an impressive start to a downward roller-coaster day.
Carla called me early this morning. She sounded distinctly different today. Her voice was different, and her attitude was different.
First off she said that I needed to keep tomorrow’s nerve conduction test appointment – the inference in her voice almost making it sound like it had been my idea not to go to it. I had never thought that. Even though I wanted the Ortho appointment on Wednesday, I had chosen this appointment over it. It was Carla who said yesterday she thought it was a waste of time. She said tomorrow’s appointment was important (this was quite a change of opinion from yesterday)
She had spoken to Dr K and told me the nerve conduction testing was important as it should apparently rule one way or another whether it is GBS I have. I had sort of figured this the whole time (although I wasn’t fully sure whether it would be able to give a final ruling one way or another – but it sounds like it might). It was Carla yesterday, who seemed to think it was a waste of time.
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